The Axis Foundation has purchased a specialist car seat for Harry, who suffers with 1p36 Deletion Syndrome, which will provide him with extra comfort and protection during car journeys.
Harry was born on the 25th March 2008 and at 13 months, after genetic tests, he was diagnosed with 1p36 Deletion Syndrome. This means that a large piece of chromosome 1 is missing from every cell in his body. Harry’s chromosome deficiency affects his growth, development, speech, hearing, sight, mobility, digestion and motor skills.
As Harry has grown, the specialist care and equipment he requires has become more expensive. As a result, Harry’s grandparents set up the ‘Harrison Smith Future Care Fund’ to provide for his future care and any specialist equipment he will need outside that which the NHS provides. Harry’s family and friends have hosted a number of fundraising events to raise money for the fund, including a Valentines Day ball which raised a fantastic total of £10,000.
In this instance, Harry’s family applied for funding through The Axis Foundation to enable them to purchase a specialist car seat for Harry. “Before we had the new seat it was difficult to transfer Harry without making him feel uncomfortable and hurting our backs leaning into the car” explained Jenny, Harry’s mum. The new car seat features a lightweight design with added comfort and support through extra-firm armrests. Above all it has a padded swivel base which makes transferring Harry from his wheelchair into the car a much easier process.
Axis Supervisor, Steve Crew, is a family friend of Harry’s as his wife has been Harry’s respite carer for a number of years now. Steve said: “On behalf of Harry and his family, please accept our thanks for your kind donation. It has made his life so much easier and enjoyable when in the car!”